While working to understand not only his own rare disease but also how the broader healthcare industry develops treatments for rare diseases as a whole, Onno Faber uncovered the building blocks of his new company.
Infectious disease and public policy experts investigated the global pandemic response, cataloged its many failures and assembled recommendations for future. But sadly their words will probably fall flat.
Global warming has, in certain instances, amped up some of the world’s most deadly diseases.
In two new studies, scientists report on symptoms, frequency, and other implications of long Covid
Many rare diseases are deadly and devastating in a way that inspires urgency and a willingness to try experimental interventions, yet treatments are only available for fewer than 5% of them.
In his latest book, clinical geneticist and biotech entrepreneur Dr. Phil Reilly chronicles centuries of medical progress that have contributed to recent breakthroughs in rare disease medicines, diagnostics, and clinical care. He says we're just...
From wearables to wastewater, the Covid pandemic has spurred important innovations in how we detect infectious disease. The benefits will likely be felt for years.
Experts are already distilling lessons from the COVID-19 pandemic to inform our response to future outbreaks.
With the exception of primetime medical dramas, you don’t hear much about rare diseases. But just because they’re “rare” — in the U.S., that’s a guideline used for diseases affecting fewer than 200,000 Americans —...
