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Tag Index  /  Showing 1 of 1 results for “Coriell Life Sciences”

Analytics & Data Bio & Life Sciences

Who Owns Your Genetic Data? Hint: It’s Probably Not You

As we move closer to an era when a sequence of every human genome is the norm, an important question looms: who will own this data? It seems intuitive to many of us that each person owns his or her genetic data and therefore should control access. But the reality is more complex. The concept of data ownership is so contentious in part because of its nature. Data moves, it morphs, and most of us can’t even say where it lives. (“The cloud” is not an answer.) For people who grew up thinking that possession is nine-tenths of the law, data is too slippery to fit into the usual framework.   More