Onno has been an entrepreneur his entire life, starting his first company in high school. After receiving his architecture degree, he started several companies while running a design-thinking company on the side. The year he moved to San Francisco with a startup in the social media space, he lost his hearing on the left due to a brain tumor. It took about a year for other medical examinations to reveal he had developed multiple tumors in his central nervous system due to a rare genetic disorder called NF2.
After being diagnosed, Onno shifted his efforts to the life science space. He dedicates his life to create new ways for rare disease R&D to take place and wants to give everyone with a rare disease the opportunity to leverage the technology for a healthy life. Watch his TedX talk here.