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Deanna Portero

Executive Director, Fibrous Dysplasia Foundation

Deanna Portero is the Executive Director of the Fibrous Dysplasia Foundation. She joined FDF with valuable experience in patient registries, research grant administration, rare disease advocacy, and project management. She previously held positions at the National Organization for Rare Disorders. Deanna is a graduate of Dartmouth College. She is passionate about improving the lives of FD/MAS patients worldwide, and accelerating progress toward better treatments and cures.