Tag Index  /  Showing 1 - 5 of 5 results for “genetic data”

Government Healthcare Science

Act Now or Forfeit Privacy for Genetic Data

A new bill making its way through the House of Representatives would allow employers to require genetic testing for employees. It would be a massive setback, stripping Americans of genetic nondiscrimination protections that took years to put in place. If you value your right to privacy, contact your Congressperson.   More

Bio & Life Sciences Government Healthcare

Senators Seek to Legislate DNA Privacy—But Is It Really Possible?

A new bill introduced by Senators Elizabeth Warren and Mike Enzi would add important privacy protections for genetic data generated by federally funded scientists or housed in government databases. It aims to protect research participants who expect their data to remain confidential. Even if the bill passes, though, the genetic data may not always be protected. But some genomics leaders now say full protection may not even be possible.   More

Analytics & Data Bio & Life Sciences

How to Get and Protect Your Genetic Data

Maybe it was the Jolie effect. Or you want to find out if you’re carrying a silent genetic mutation that could be passed on to a child. Or perhaps you’re just really hoping you can blame your DNA for how awful cilantro tastes. Whatever the reason, you’re interested in finding out something about your genome. Now what? Though consumer genetic testing and personal genome sequencing are still nascent fields, every indication suggests that the public will have a virtually insatiable appetite for genetic data. And as scientists get better at establishing links between DNA and diseases or specific traits, that demand will only increase. But are we ready for this data?   More

Global Tech

Techonomy’s Most-Read Articles of 2014

As 2014 winds down, we look back on a productive and impactful year at Techonomy. Our events and publishing projects continued the dialogue about the centrality of technology in modern life and its potential to make the world better. Our editorial content is a growing channel. Our community of writers and videographers includes over 100 published contributors, including both professional journalists and thought leaders of industry, politics, and public service. Here's a look back at our five most-read Techonomy exclusives of the past twelve months.   More

Analytics & Data Bio & Life Sciences

Who Owns Your Genetic Data? Hint: It’s Probably Not You

As we move closer to an era when a sequence of every human genome is the norm, an important question looms: who will own this data? It seems intuitive to many of us that each person owns his or her genetic data and therefore should control access. But the reality is more complex. The concept of data ownership is so contentious in part because of its nature. Data moves, it morphs, and most of us can’t even say where it lives. (“The cloud” is not an answer.) For people who grew up thinking that possession is nine-tenths of the law, data is too slippery to fit into the usual framework.   More